Corrections

Tumulong magpuna ngayon!Naiwasto

Tekstong galing sa johnask - English

  • Progeria, or Hutchinson-Gilford syndrome

    • Progeria, or Hutchinson-Gilford syndrome, is an extremely rare genetic disease that causes physical changes that strongly resemble accelerated senescence of those affected by it (accelerated aging from the first or second year).
  • This disease now affects 1 in 4 to 8 million births.
    • The symptoms of the disease are the consequences of premature aging with alopecia, joint pain or joint disorders.
    • There are currently no curative treatments but only symptomatic treatments.
    • Unfortunately, these treatments have an end because they allow patients to live on average only 12 to 13 years.
  • Now, I would like to add the testimony of Ali Hussain Khan, a 14-year-old boy with this disease.
    • Out of 7 brothers and sisters, Ali had 2 brothers and 3 sisters died from progeria.
    • He now has 2 not sick sisters who support him.
    • It is a rare genetic disease but as in India, doctors were not trained on this kind of disease, parents continued to have children, unfortunately finding that 6 of their children were affected.
    • Being out of school due to harassment, Ali takes advantage of the support of the SB Devi Charity of Calcutta to be in contact with other people suffering from this disease.
  • I wanted to share this testimony because Ali touched me a lot with his story and his strength to continue living despite the death of 5 brothers and sisters.

Pakiusap, tumulong sa pagtatama sa mga pangungusap! - English