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johnask (으)로 부터 도착한메세지 - English

  • Progeria, or Hutchinson-Gilford syndrome

    • Progeria, or Hutchinson-Gilford syndrome, is an extremely rare genetic disease that causes physical changes that strongly resemble accelerated senescence of those affected by it (accelerated aging from the first or second year).
  • This disease now affects 1 in 4 to 8 million births.
    • The symptoms of the disease are the consequences of premature aging with alopecia, joint pain or joint disorders.
    • There are currently no curative treatments but only symptomatic treatments.
    • Unfortunately, these treatments have an end because they allow patients to live on average only 12 to 13 years.
  • Now, I would like to add the testimony of Ali Hussain Khan, a 14-year-old boy with this disease.
    • Out of 7 brothers and sisters, Ali had 2 brothers and 3 sisters died from progeria.
    • He now has 2 not sick sisters who support him.
    • It is a rare genetic disease but as in India, doctors were not trained on this kind of disease, parents continued to have children, unfortunately finding that 6 of their children were affected.
    • Being out of school due to harassment, Ali takes advantage of the support of the SB Devi Charity of Calcutta to be in contact with other people suffering from this disease.
  • I wanted to share this testimony because Ali touched me a lot with his story and his strength to continue living despite the death of 5 brothers and sisters.

각 문장을 수정해주세요! - English

  • 제목
  • 문장 1
    • Progeria, or Hutchinson-Gilford syndrome, is an extremely rare genetic disease that causes physical changes that strongly resemble accelerated senescence of those affected by it (accelerated aging from the first or second year).
      투표하세요!
    • Progeria, or Hutchinson-Gilford syndrome, is an extremely rare genetic disease that causes physical changes that strongly resembleing accelerated senescence ofin those affected by it (accelerated ageing from the first or second year).
      AussieInBgAussieInBg profile picture 댓글 1
      투표하세요!
    • Progeria, or Hutchinson-Gilford syndrome, is an extremely rare genetic disease that causes physical changes that strongly resemble accelerated senescence ofin those affected by it (accelerated aging from the first or second year).
      gfarnabgfarnab profile picture 댓글 1
      투표하세요!
    • ADD a NEW CORRECTION! - 문장 1ADD a NEW CORRECTION! - 문장 1
  • 문장 2
  • 문장 3
    • The symptoms of the disease are the consequences of premature aging with alopecia, joint pain or joint disorders.
      투표하세요!
    • The symptoms of the disease are the consequences of premature aging with: alopecia, joint pain or joint disorders.
      gfarnabgfarnab profile picture 댓글
      투표하세요!
    • The symptoms of the disease are the consequences of premature ageing with alopecia, joint pain or joint disorders.
      AussieInBgAussieInBg profile picture 댓글
      투표하세요!
    • ADD a NEW CORRECTION! - 문장 3ADD a NEW CORRECTION! - 문장 3
  • 문장 4
  • 문장 5
    • Unfortunately, these treatments have an end because they allow patients to live on average only 12 to 13 years.
      100% GOOD (1 votes)
    • Unfortunately, these treatments have an endonly postpone progression of the disease because they allow patients to live on average only 12 to 13 years.
      AussieInBgAussieInBg profile picture 댓글
      투표하세요!
    • ADD a NEW CORRECTION! - 문장 5ADD a NEW CORRECTION! - 문장 5
  • 문장 6
  • 문장 7
  • 문장 8
  • 문장 9
    • It is a rare genetic disease but as in India, doctors were not trained on this kind of disease, parents continued to have children, unfortunately finding that 6 of their children were affected.
      투표하세요!
    • It is a rare genetic disease but, as in India, doctors were not trained on this kind of disease, parentsinformed about this disease. Consequently, the parents of Ali continued to have children, unfortunately finding that 6 of their children were affected.
      AussieInBgAussieInBg profile picture 댓글 1
      투표하세요!
    • It is a rare genetic disease but, as in India, doctors were not trained on this kind of disease, parents continued to have children, unfortunately finding that 6 of their children were affected.
      gfarnabgfarnab profile picture 댓글
      투표하세요!
    • ADD a NEW CORRECTION! - 문장 9ADD a NEW CORRECTION! - 문장 9
  • 문장 10
    • Being out of school due to harassment, Ali takes advantage of the support of the SB Devi Charity of Calcutta to be in contact with other people suffering from this disease.
      100% GOOD (1 votes)
    • BeingAli is out of school due to harassment, Ali. He takes advantage of the support ofrom the SB Devi Charity of Calcutta to be in contact with other people suffering from this disease.
      AussieInBgAussieInBg profile picture 댓글
      투표하세요!
    • ADD a NEW CORRECTION! - 문장 10ADD a NEW CORRECTION! - 문장 10
  • 문장 11
    • I wanted to share this testimony because Ali touched me a lot with his story and his strength to continue living despite the death of 5 brothers and sisters.
      100% GOOD (1 votes)
    • ADD a NEW CORRECTION! - 문장 11ADD a NEW CORRECTION! - 문장 11